At which research center do you want to participate?

Gender

Male
Female

First name

Last name

E-mail address

You will receive an email which you must confirm

Phone number

Date of birth

MM-DD-YYYY (e.g. 05-06-2024)

Have you been diagnosed with squamous cell carcinoma of the oral cavity, throat, or voice box (larynx) by a physician?

Yes
No
Unsure

Have you been treated with anti-PD1 treatment, for example, Keytruda® (pembrolizumab) or Opdivo® (nivolumab)?

Yes
No
Unsure

Has your disease come back (recurrence or relapse) or has your disease spread to other parts of your body (metastatic disease)?

Yes
No
Unsure

For women only – are you pregnant or breastfeeding or are you planning to get pregnant? (if man choose no)

Yes
No

How did you hear about us?

Via a different personTikTokOtherLink on a websiteInstagramGoogle search / advertFacebook

Privacy statement

I hereby give Link2Trials my consent to store the personal data I have provided in my personal profile and to process them for the purposes stated in the declaration of consent. View these here.

Declaration of Consent


April 2022

www.link2trials.us

 

What data do we collect?
When you register an account, you will be asked to fill out data.

• We will request your name, address, postcode, and town/city to contact you; for example, to make appointments or send you information.
• In addition, we will need your phone number to contact you and send you a reminder message.
• To create your account, we will ask for your email address. We also need this information to contact you by email; for example, to send you confirmation and reminder emails. In addition, we send emails to inform you of any new trials.
• We need your address, postcode, and town/city in order to display local trials or studies within a certain radius.
• Your time zone and locale are processed to display the correct time and language for you.
• Your IP address is processed to protect your account.

These personal data are necessary for the intended and actual performance of an agreement. Without this information, we will not be able to enter into an agreement or use you as a trial subject. In addition, we will ask you for your prior consent to process of this data.

Research purposes: “special personal data”
In addition, certain information is requested for research purposes in order to see whether you are a match with the trial in question and to carry out the study. This information includes personal data with respect to your gender, age, medication use, fertility, height and weight, alcohol consumption, smoking habits, and other medical data and/or data concerning health.

A large part of this information is ‘special personal data’ in the sense of the GDPR. Because this information is sensitive, we treat it with care. This data will only be processed with your explicit consent.

 



Full privacy statement

PRIVACY STATEMENT

April 2022

www.link2trials.com

 

About us

Link2Trials is the business that determines the means and purposes of the processing of your personal data within the meaning of the California Consumer Privacy Act (referred to hereinafter as: CCPA).

What data do we collect and for what purposes?

When you register an account, you will first be asked to fill in the following data:

• To create your account, we will ask you for your email address and password.

After confirming your email address, we will ask you to supplement your profile with the following information:

• We will ask you for your name, address, postal code and place of residence so we can contact you, for instance to arrange appointments or to send information.
• In addition, we need your telephone number in order to be able to contact you by telephone and send a reminder message. We use your address, postal code and place of residence to be able to display (local) trials or studies within a certain radius from your address.
• Your time zone and locale are processed to display the correct time and language for you.
• Your IP address is processed to protect your account.
• We also need your already-stored email address to contact you by email, for example to send confirmation and reminder emails. We also send emails to alert you to new studies.

In addition, certain special personal data are requested for research purposes, in order to assess whether you match the requirements applying to the relevant study and to subsequently conduct the study with you. The data that may be requested for research purposes include personal data relating to your gender, age, use of medication, fertility, height and weight, alcohol consumption, smoking behavior and other medical and/or health data.

If you register for a specific study, part of the above data, including the data related to your health (special personal data), will be requested. After all, without these special data, we cannot match you with any of the available studies. The type and quantity of special personal data may vary per study, because we only collect the data necessary for that specific study.

We ask for your consent

We may only process special personal data if you give your consent for this. When creating an account, we therefore ask you for your explicit consent for processing the special and other personal data you have provided for the above purposes. You can withdraw this consent at any time.

With whom do we share your personal data?

Your personal data may be provided to third parties who will take on part of the processing on behalf of Link2Trials. For example, we use an external party to provide dedicated hosting for the personal data. This party is certified to store medical data. These parties are service providers within the meaning of the CCPA.

After you have registered for a specific study or a specific project, your special and other personal data will be shared with research institutions, which may or may not contact you to participate in the specific study or project.

We verify in advance that these institutions are recognized research institutions that comply with national legislation and regulations. In principle, your personal data will only be transferred to research institutions within the country in which you are resident.

By interfacing with our website, your personal data are also exchanged with social media, such as Facebook, so that Facebook may display relevant ads to you and other users.

Protecting your personal data

We have taken appropriate technical measures to protect personal data against loss or other forms of unlawful processing. These measures ensure a level of security appropriate to the data that we process. We ensure that the account uses a secure/encrypted SSL connection. In addition, we use two-factor authentication and encrypt your password.

Retention period

We will not keep your data longer than necessary for the purpose for which they were received.

In principle, your personal data will be retained until you cancel your account with us. When you cancel your account, the personal data will be deleted within 72 hours at the latest.

If you have registered for a specific study and have not created an account with us, the data you have provided will be used for the application process for that specific study. Your study-specific data will be deleted within 90 days after the end of the study.

We will ask holders of inactive accounts to reactivate their account by email. Personal data in accounts that have not been active for more than 10 years will be deleted after this period.

The above periods apply unless there are further legal obligations for us to store the data or keep them available for longer.

Rights

You have the right to inspect your personal data and the right to rectify your personal data. If you want to know which of your personal data we process, you can submit a written request to access your data. Should your data be incorrect, incomplete or irrelevant, you can ask us in writing to alter or supplement your data.

If you have given us consent to process certain of your data, you are always entitled to withdraw this consent. The withdrawal of this consent does not prejudice the lawfulness of our processing on the basis of your consent, which took place prior to this withdrawal.

You also have the right to have your personal data erased, the right to restrict their processing and the right to object to their processing. In addition, you have the right to transfer your data or to make them transferable (the so-called “right to data portability”). You can also submit a written request to this end.

In this context, “written” includes by email. You can email your request to us via helpdesk@link2trials.com. We will process your request as soon as possible, but always within four weeks.

You also have the right to submit a complaint about the way in which we handle your data. You can submit any such complaints to the Federal Trade Commission.

Changes

We reserve the right to make changes to this privacy statement. The changes shall enter into force on the date announced for their entry into force.